PKU Living - Uniting PKU patients, their families and medical professionals everywhere

Uniting PKU patients, their families and medical professionals everywhere

A place for everyone who has a connection connection with PKU - parents, families, patients and medical staff. New members welcome!

Members

View All

Forum

Lack of sleep and phe levels 4 Replies

Started by Debbie Colyer. Last reply by Debbie Colyer Jan 26.

Introductions 9 Replies

Started by Kate Buckland. Last reply by Kurt Jan 24.

Low or No protein Meal Idea's 7 Replies

Started by Ed Buckland. Last reply by Amanda Christina Cosburn Dec. 1, 2008.

Events

Add an Event

Blog Posts

I really hate insurance companies and the companies who deliver my daughters formulas. First you fight with insurance for coverage then you search and search for someone willing to supply you with it each month. We had been using one company but they were charging my insurance company double the price. Then we switched formulas for Cathryne and now the company we were using says that the insurance will only reimburse them $38 per month and we would have to pay the rest. Then they said that they… Continue

Posted by Dana Wheeler on January 19, 2009 at 1:59am — 2 Comments

Latest Activity

www.makemoneywith-google.com left a comment for www.makemoneywith-google.com

September 6

www.makemoneywith-google.com left a comment for www.makemoneywith-google.com

September 6

www.makemoneywith-google.com left a comment for www.makemoneywith-google.com

September 6

www.makemoneywith-google.com is now a member of PKU Living

Welcome Them!

September 6

Lily Bell is now a member of PKU Living

Welcome Them!

August 17

Ryan Amen is now a member of PKU Living

Welcome Them!

July 15

Erin Miller, MS, RD, LD is now a member of PKU Living

Welcome Them!

July 13

Justin78 updated their profile photo

July 11

Notes

Recipes page

Hello all,

Since I couldn’t fix the problem with the recipes tab, I have come up with a new solution. As such, I’ve start

… Continue

Created by Kate Buckland Oct 28, 2008 at 3:59pm. Last updated by Kate Buckland Oct. 28, 2008.

Problems adding recipes

Hello All,

Amanda has flagged it up with me that you can't add to the recipes page (which is actually a notes page I ammended if you haven't already guessed!).

This is an oversight on my part - I didn't realise that only I could add to this page - so I'm currently looking into ways to add an interactive recipes page, and I'll update you all soon.

Kate x

Continue

Created by Kate Buckland Oct 19, 2008 at 10:30am. Last updated by Kate Buckland Oct. 19, 2008.